ABOUT US

 

The Cameroon Sickle Cell Organisation (CAMSiCO); a constituted non-profit organization registered in Cameroon in February 2013 whose mission is to strive towards alleviating the suffering of those affected by sickle cell disease (SCD) in Cameroon.  Sickle cell is the most common human blood genetic disorder in the world, with over 500,000 new babies born annually and 100.000 live with the disease in Cameroon.

10-12 million people suffer

  An estimated 10-12 million people suffer from the condition in Africa, with as many as 1 in 4 West Africans carrying the affected gene. In Africa only 1 out of 5 sickle babies will not see their 5th birthday, largely due to inadequate healthcare for sickle cell sufferers. Progress in prevention and new therapies for SCD are only affordable in developed countries, while developing countries especially in Africa where SCD is most common do not have access to these therapies like Penicillin Prophylaxis, Blood Transfusion or Stroke prevention.

4th global health priority

The burden of SCD in Africa has led to intensified campaigns over the last decade, culminating in the UNESCO resolution (33rd Summit Paris 2005) and the 59th World Health Assembly resolution (May 2006) effectively declaring Sickle Cell as the 4th global public health priority, behind Malaria, TB and HIV. This was later followed through with a Regional Committee for Africa statement (Dr L Sambo, WHO Addis Ababa, 30thAugust 2006), calling for a comprehensive programme for Africa addressing the issues of advocacy, prevention, counselling, early detection, data collection, surveillance, research, community education and partnerships. The Cameroon Sickle Cell Organisation was formed in response to pleas and anecdotes from Cameroon.

10-12 million people suffer

The Cameroon Sickle Cell Organisation, though established in February 2013, it all started in 2007 by a small group of patients, carers and health professionals who had the common interest of wanting to raise awareness of sickle cell disorder and improve care for those who suffered from the condition.  This founder group can be viewed as a ‘Support Group’ that developed from humble beginnings in a sitting- room in Bamenda, Northwest Province in 2009 to a national non-profit organisation that is the Cameroon Sickle Cell Organisation (CamSiCO) today.